hayleigh has been acting off again, but this morning woke up her chearful self so happy...
been looking into the food connection. though hayls isnt considered autistic (now) she would have been 1-2 years ago. I read up on it and female hormones have a protective effect on the brain hence why autisim occurs more in males than females.
If H had been a boy she likely would have been. but she still has traits and her body still has the same issues that go with autism, like food intolerance causing gut problems. her body *is* autistic but her mind is mostly spared.
I've noticed on her off days her tummy is bloated and her eye wanders and she is very spacy more sensitive to sounds and touch and pain. needs to be held more more cuddles etc. also ears and cheeks were red.
yesterday her tummy was distended and she barely ate and today she is herself. its happened too many times to deny the causation.
I found myeslf ont he autisim mercury mailing list a few years ago after it was mentaioned on a forum for the vitamins i take for my mood. I have no doubt their suggestions will be helpful for her but i am paralized to make the leap. im scared. some of the things i did before she went in for her assessment for autisim worked and seem to have had a direct relationship with her *growing out of it*
at 10 months old I started the vitamins myself and was breastfeeding. at ten months old she started developing!
anyway i could go on and on about the early days till now. but all i know is my instincts are often right dispite my lack of confidance that it is.
so far to date we have found a few forums dedicated to special diets or enzymes that may help her.
trying low oxalates
sara's diet
phenols..
more phenols
enzymes for phenols
epsom salts this one is a big one with hayleigh. her really bad day we skipped giving her a bath. last night she not only got a bath but i slathered home made cream on her. along with rubbing her tummy with castor oil.
the first diet i found was SCD specific carboydrate diet which is actually treating for phenols by removing those foods. which is many foods. but it was entirely daunting and would not work in my home with my meat loveing carb eating husband who honestly needs to stop eating how he does but i doubt he will. but he has some symptoms similar to hayls.so once I get them both started on no fenol enzymes we will see how it goes. we do notice a great improvement with Hayls being on the enzymes she has now from enzymedica digest gold which is another brand and a broad spectrum enzyme but phenols are covered partly in it as well. it's just more expensive.
i am still looking into more biomedical things (suppliments) so far consistantly its enzymes probiotics zinc and magnesium.
also I notice addison is also developing some of the same digestive problems.
Have you tried/do you do a gluten free diet with her? It was recommended to us when O had so many digestive issues himself. I still revert back to it when we have problems. It seemed to help quite a bit.
ReplyDeletewe were almost grain free for a while. it does help. so does keeping off milk and soy. its more than just the gluten. though it doesnt help (the gluten i mean) but going off gluten does nothing for her digestion. enzymes and probiotics are the only thing along with antifungal meds that do anything for her. (so far)
ReplyDeletewe also have done the food allergy blod spot need to update that. as she was much younger, some were elevated but not alergy not even ones we know she had reactions to. but looking back on what was elevated it fits the theories behind some of these other things i linked to. like the leuten/phenol and the oxalates.
and she has been tested for celiac.
think part of the problem is many kids with gluten sencitivity also are sencitive to corn and nearly all gluten free things i find have corn in it it's silly.
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